0
Skip to Content
RORA Compass
Understand RORA
A Day in the Life
Our Community
Our Team
Connect
Donate now
RORA Compass
Understand RORA
A Day in the Life
Our Community
Our Team
Connect
Donate now
Understand RORA
A Day in the Life
Our Community
Our Team
Connect
Donate now

Recent News

  • Children’s Hospital of Philadelphia Researchers Chart Natural History of Patients with SCN8A-Related Disorders

  • Common Genetic Variants Linked to Drug-Resistant Epilepsy

  • Novel Biomarker Helps Presurgical Evaluations in Children with Drug-Resistant Epilepsy

  • Split Gene Therapy Delivers Promise in Mice Modeling Dravet Syndrome

  • Doctors Heal Infant Using First Customized-Gene Editing Treatment

MAKE AN IMPACT TODAY and DONATE NOW

Stay in the loop

Sign up to stay connected on research milestones and family stories as we advocate for individuals with RORA variants

Thank you!

Everyone deserves a future full of possibility. At RORA Compass, we are determined to make that future a reality.

RORA Compass is a 501(c)3 nonprofit organization exempt from federal income tax and incorporated in the State of Ohio. It is a fully volunteer organization with no paid staff.

Federal Identification Number (EIN): 33-4971014

User Agreement & Terms | Media Center | Email Us